In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors
The other day, as I got my dogs rain coat on him, it dawned on me: "I am absolutely crazy." Not that me getting my dogs raincoat on was the first time I ever noticed it, but realizing your dog has a raincoat when you yourself do not, really gets you thinking. I would literally… Continue reading What Being a Dog Mom is Really Like
When I got rid of Facebook a little over 2 years ago, I was really seeking some privacy. As I've previously mentioned, I think oversharing the wrong information can actually have a huge negative impact on us. The more engrossed we get in social media as a culture, the more we seem to lose the… Continue reading What I’ve Learned From Deactivating My Facebook
spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?
Well, it's official. Regardless of our Instagram photos of sunsets on the beach in early Fall captioned, "Summer isn't over until I say it is!", Summer is O V E R. The beaches are empty, the hot air has been replaced by a crisp breeze and the leaves are beginning to change color and shed… Continue reading How to Naturally Kick Seasonal Affective Disorder
To all of my family and friends reading this post, you know this title is not an exaggeration whatsoever. You also either lived through it with us or have heard our story a million times and laughed to yourself every weekend in October when the weather is "perfect for a wedding." October 9th is our… Continue reading We Got Married in a Hurricane
There was no greater feeling in the world than hearing my tumor was benign. Make no mistake however, these monsters can be invasive, grow aggressively, damaging to vital organs and in some cases, have caused fatalities. I feel like I say this all the time, but I am very lucky that my tumor is where… Continue reading What it’s Like Walking Into a Cancer Center as a Patient
HAPPY OCTOBER!! Not to be too basic, but, I LOVE FALL. The colors, the clothes, the comfortable weather, the pumpkin flavored everything. GIVE ME FALL. I've noticed, however, that as much as I like Fall I don't often partake in most of the things the season has to offer. I'll pull up to Starbucks and… Continue reading Warning: Basic Chick Fall Checklist Ahead