The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors

Feel It Completely and Let It Go

For a while there, I had really mastered the art of talking to myself in a positive way. I was able to calm any negative thoughts, calm any anger I was feeling or ill feelings and I was even able to constantly look on the bright side of this tumor. Lately, it's been a little… Continue reading Feel It Completely and Let It Go

Tips For Making a Lifestyle Change

It's not easy when you suddenly change up the way you have been doing things your entire life. Since I was young I always ate meats and consumed dairies. I never really lived an organic lifestyle or put thought into what I was putting on or in my body. Recently, having changed my entire lifestyle,… Continue reading Tips For Making a Lifestyle Change

I SHRUNK MY TUMOR.

I wasn't super nervous for my follow up appointment ... until the night before. The whole time leading up to this visit at Dana Farber I was calm, cool and collected. The MRI really freaked me out the most but the results, at that time, weren't bothersome to me. Then, the night before the appointment… Continue reading I SHRUNK MY TUMOR.

Scanxiety

It's a real thing, scanxiety. I'm almost 100% positive it's not considered a real word but trust me, it's a real feeling. One that I thought I would never have to feel but since I do, I need to feel it and let it go. These past few months, while on watch and wait, have… Continue reading Scanxiety

How Quickly We Forget

I am NOT, by any means, an outdoorsy person. In fact, I really resonate with this meme in particular:I do, however have a best friend who is outdoorsy. We often speak about how we are so opposite and that's how our friendship works. She tends to get me into situations that are out of my… Continue reading How Quickly We Forget

Coffee: A Thing of the Past

I used to be someone who NEEDED their cup of coffee every single morning. I wouldn't truly feel "awake" until I was about half way through my cup. If I ever didn't have a chance to make it myself in the morning or if I was running late and didn't have time to stop and… Continue reading Coffee: A Thing of the Past

Comparison: The Thief of Joy

I saw a blogger the other day who appeared to have the "perfect" blog. Her days seemed to be spent dedicated to capturing the perfect photo, in the perfect outfit, with the perfect back drop. I immediately felt like my blog was inadequate. For a few minutes I even thought about stopping my blog because… Continue reading Comparison: The Thief of Joy

Heal Documentary

Very few things will come into your life that spark you to change the way you have been living. For me, my diagnosis was that catalyst but there have been a few things that I only stumbled upon because of my diagnosis that continue to change my life. I know its all part of my… Continue reading Heal Documentary