My Last MRI of 2019

I can't believe I am nearing my last MRI of the year. I am so happy this year is almost behind me and I am going into the new year hopeful. Mostly hopeful that my regular 3 month MRI and doctor visits will be deduced to every 6 months. I was thinking about how far… Continue reading My Last MRI of 2019

5 Things My Desmoid Tumor Made me Thankful For

You don't usually hear the word thankful and Desmoid Tumor in the same sentence. Because of the holiday, I decided to switch that up. There are plenty reasons why I could dislike my Desmoid but: Thanks for reminding me, girl. Here are 5 things things my tumor has made me thankful for:My Support Group -… Continue reading 5 Things My Desmoid Tumor Made me Thankful For

The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors