A Blog About Nothing

I really would love to blog regularly. When I created my Instagram page and my blog, I had imagined posting frequently. I wanted to create content based off my condition multiple times a week. I would have endless ideas and beautiful, meaningful, transparent topics. But, I am healing. The best part about healing (aside from… Continue reading A Blog About Nothing

New Year, Same Mission

I can't believe we are halfway though the first month of the new year! Before we know it we are going to be getting ready to celebrate 2021. Time really does fly. My coworker and I were talking about it and its been about 13 years since I graduated high school. 13 years? WHAT?! I… Continue reading New Year, Same Mission

My Last MRI of 2019

I can't believe I am nearing my last MRI of the year. I am so happy this year is almost behind me and I am going into the new year hopeful. Mostly hopeful that my regular 3 month MRI and doctor visits will be deduced to every 6 months. I was thinking about how far… Continue reading My Last MRI of 2019

5 Things My Desmoid Tumor Made me Thankful For

You don't usually hear the word thankful and Desmoid Tumor in the same sentence. Because of the holiday, I decided to switch that up. There are plenty reasons why I could dislike my Desmoid but: Thanks for reminding me, girl. Here are 5 things things my tumor has made me thankful for:My Support Group -… Continue reading 5 Things My Desmoid Tumor Made me Thankful For

Trusting the Universe is Scary but Necessary

I am completely a believer that "all things happen for a reason." If we dig hard enough, in even the most inconvenient or upsetting situations, we can find a reason or a meaning for why things happen to us the way they do. With that, I also completely trust the universe. I know, that no… Continue reading Trusting the Universe is Scary but Necessary

The Art of Letting Go

I've never been good at letting go of things. I don't mean silly grudges or gripes. I always have an easy time of letting those go. I mean tangible things. Things that are comfortable to me. Things that I adore and hold meaning.  I'll never be the person that hops on a plane and starts… Continue reading The Art of Letting Go

The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors

What Being a Dog Mom is Really Like

The other day, as I got my dogs rain coat on him, it dawned on me: "I am absolutely crazy." Not that me getting my dogs raincoat on was the first time I ever noticed it, but realizing your dog has a raincoat when you yourself do not, really gets you thinking. I would literally… Continue reading What Being a Dog Mom is Really Like

Genetic Testing: Should I or Shouldn’t I?

spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?